It appears from your tests that you have “third degree heart block with syncope.” October 9, 1991. I heard these words for the first time. I finally had a diagnosis after 27 years. A pacemaker implant the next day and my wired journey began.
I cannot imagine for a moment what my life would look like without WIRED4LIFE being a large component. The women I’ve met, the experiences I’ve had, the knowledge I’ve gained, the overall feeling of wellness. A path clearly marked now, by the footsteps of many wired sisters.
The idea for a WIRED4LIFE book has been living in my heart for a number of years. Many wired sisters and friends have encouraged me to write this book. I am starting with what I remember and what has been shared with me through the years. I pray you find your story here too.
From wired sister Sandy, who shares her own story in book:
It was during my research on pacemakers and settings that I found WIRED4LIFE. I will honestly say that initially I didn’t join as it was a ‘pay’ group. I had been visiting another group that is free but there was a lot of politics and while researching the posts could be helpful, the site seemed to have an almost high school environment – there was definitely an ‘in crowd’. I never felt like I belonged. There was a lot of technical information which for me, in the beginning, was needed. I like to know how things work and it allowed me to find a list of questions to bring to my doctor with questions, but I grew out of that fast.
Then I decided that I liked the idea of a group of women supporting each other. WIRED4LIFE has a much different feel. I’m still quiet most of the time, but I don’t feel like there is an ‘in crowd’. Everyone is ‘IN’. Everyone is equal and welcome
This group isn’t something you ‘grow out of’ it is a community of women that is evolving and growing and is there for each other no matter what. It is truly special and that is because Dawn is special and each of you are as well
We are fortunate to live at a time where first of all we have these crazy contraptions that can save our lives and in many cases improve them and that we live in this digital world where we can connect with people from all over and support each other.
And because I’m a huge believer in “laughter as the best medicine” the book ends with funnies shared from Facebook! The Q was if you had ever been asked a stupid or funny question relating to your device!
Helen: An elderly lady who had a friend with a pacemaker told me (before my first pm implant) that the procedure was ‘just like having your ears pierced’. I wanted to grab her afterwards and ask who the heck pierced her ears.
Claudia: The “strangest” comment I have had was a person I knew suddenly went into a long story about a friend who died and the “pacemaker” kept trying to keep them alive.
Jennifer: I had just turned 25 when I got mine. My daughter was in kindergarten and told her teacher that her mom had gotten a pacemaker. So her teacher thought I was in my 60’s. When she met me she said you’re a lot younger than I thought.
Kerri: Always the same “at your age?” Like heart disease is only a senior special.
There are 138 pages in between, many wired sisters shared their stories, as well as device manufacturer and cardiac-specific information, as well as the entire journey of mine – becoming wired, starting WIRED4LIFE and what it all feels like and looks like ten years later.
Wired4life: My Journey to Becoming Wired
by Dawn L Huberty
Thanks to all who have purchased the book, and a special thanks in advance for those who are sharing it with the world! ~Dawn Huberty, WIRED4LIFE Founder